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Information for participating organisations:

• Culture of Care Information pack - February 2024

Question and Answer sessions:

• - 27 February 2024

• - 12 March 2024
  

• Question and Answer session slide deck

Foundations of the programme:

• - NHS England

• - NHS England

•  - Health & Social Care, Neurodiverse connection
•  - Buildings & Design, Neurodiverse connection  
• - Williams, Corbyn and Hart (2023)
• - Doherty, McCowan and Shaw (2023)
•  - NHS England (2023)
•  - Roches Rosa (2022)
• - Mental Health in Autism, University of Nottingham
• - The Culture of Care: Incorporating Autism-Informed and Trauma-Informed Care (2025)
• Culture of Care Positive Behaviour Support (PBS) Position Statement
• Guide to PBS and ABA for professionals, parents and caregivers, Neurodiverse connection

• Patient and Carer Race Equality Framework (PCREF) - One-page infographic

• Working Well Together - 网曝黑料

•  - NHS England

•  - Social Care Institute for Excellence (SCIE) 

• National Development Team For Inclusion (NDTi)

• - National Institute for Head and Care Research (NIHR) 

• - East London Foundation Trust

• - UK Standards for Public Involvement 

•  - Applied Resources West, NIHR 

• - National Mental Health Consumer & Carer Forum

•  - Fuse, the Centre for Translational Research in Public Health 

• - Leeds Social Sciences Institute, University of Leeds  

• Tameside and Glassop Integrated Care NHS Foundation Trust

• Nordin A, Kjellstrom S, Robert G, Masterson D, Areskoug Josefsson K. . BMJ Open. 2023;13:e073808. 

• Marsilio M, Fusco F, Gheduzzi E, Guglielmetti C. International Journal of Environmental Research and Public Health. 2021;18:3336. 

• Faulkner, A., & Thompson, R. (2023). 38(4), 537–560.

• Lambert, N. and Carr, S. (2018), ‘’: Co-production in UK mental health research, lessons from the field. Int J Mental Health Nurs, 27: 1273-1281

• (although this relates to people living with HIV it has some helpful well-being tools for people with lived experience involved in co-production e.g., bracketing, grounding and holistic check-ins)

• - National Survivor User Network

• - Neurodiverse Connection

Co-production in mental health:

•   - Skills for Care

• - a charity that works collaboratively on innovative digital and community projects, recognising the untapped strengths of people who’ve experienced mental health challenges.

Tools to co-produce

• Iriss
•  - Pilotlight, Iriss
•  - Applied Resources West, NIHR
• Mind

Reports

•  - National Survivor User Network

Co-production guidance document

• A guidance document for wards to support meaningful coproduction and develop lived experience roles - NCCMH, NDC, BTG and Trauma-informed Care Collaborative

Watch a British Sign Language video aims at people with lived experience of inpatient mental health care.

The video provides information on what the Culture of Care Programme is and how to get involved.

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• NCCMH National Sexual Safety Standards 

• , 15 (1): 1–3 doi:10.20299/jpi.2019.006 - NAPICU 2019 

• Design Guidance for Psychiatric Intensive Care Units, 2017 - National Association of Psychiatric Intensive Care Units (napicu) & Design in Mental Health Network 

•  - The University of Manchester
•  - Data on emergency department presentations for self-harm in Manchester
•  - Patient, carer partners and public involvement in research

Report

•  - National Confidential Inquiry into Suicide and Safety in Mental Health
• - International Society of Autism Research

Guidelines

•  - National Confidential Inquiry into Suicide and Safety in Mental Health
•  - National Confidential Inquiry into Suicide and Safety in Mental Health

Publications

• Carter G, Milner A, McGill K, Pirkis J, Kapur N, Spittal MJ. Predicting suicidal behaviours using clinical instruments: systematic review and meta-analysis of positive predictive values for risk scales. The British Journal of Psychiatry. 2017 Jun;210(6):387-95.
• Chan MK, Bhatti H, Meader N, Stockton S, Evans J, O'Connor RC, Kapur N, Kendall T. Predicting suicide following self-harm: systematic review of risk factors and risk scales. The British Journal of Psychiatry. 2016 Oct;209(4):277-83.
• Graney J, Hunt IM, Quinlivan L, Rodway C, Turnbull P, Gianatsi M, Appleby L, Kapur N. Suicide risk assessment in UK mental health services: a national mixed-methods study. The Lancet Psychiatry. 2020 Dec 1;7(12):1046-53.
• Large MM, Ryan CJ, Carter G, Kapur N. Can we usefully stratify patients according to suicide risk?. Bmj. 2017 Oct 17;359.
• Morriss R, Kapur N, Byng R. Assessing risk of suicide or self-harm in adults. BMJ. 2013 Jul 25;347.
• Quinlivan L, Cooper J, Meehan D, Longson D, Potokar J, Hulme T, Marsden J, Brand F, Lange K, Riseborough E, Page L. Predictive accuracy of risk scales following self-harm: multicentre, prospective cohort study. The British Journal of Psychiatry. 2017 Jun;210(6):429-36.
• Quinlivan L, Cooper J, Steeg S, Davies L, Hawton K, Gunnell D, Kapur N. Scales for predicting risk following self-harm: an observational study in 32 hospitals in England. BMJ open. 2014 Apr 1;4(5):e004732.
• Quinlivan L, Gorman L, Littlewood DL, Monaghan E, Barlow SJ, Campbell S, Webb RT, Kapur N. ‘Wasn’t offered one, too poorly to ask for one’–Reasons why some patients do not receive a psychosocial assessment following self-harm: Qualitative patient and carer survey. Australian & New Zealand Journal of Psychiatry. 2022 Apr;56(4):398-407
• Quinlivan L, Gorman L, Marks S, Monaghan E, Asmal S, Webb RT, Kapur N. Liaison psychiatry practitioners’ views on accessing aftercare and psychological therapies for patients who present to hospital following self-harm: multi-site interview study. BJPsych open. 2023 Mar;9(2):e34.
• Quinlivan L, Gorman L, Monaghan E, Asmal S, Webb RT, Kapur N. Accessing psychological therapies following self-harm: qualitative survey of patient experiences and views on improving practice. BJPsych open. 2023 May;9(3):e62.
• Quinlivan L, Steeg S, Elvidge J, Nowland R, Davies L, Hawton K, Gunnell D, Kapur N. Risk assessment scales to predict risk of hospital treated repeat self-harm: A cost-effectiveness modelling analysis. Journal of affective disorders. 2019 Apr 15;249:208-15.
• Quinlivan LM, Gorman L, Littlewood DL, Monaghan E, Barlow SJ, Campbell SM, Webb RT, Kapur N. ‘Relieved to be seen’—patient and carer experiences of psychosocial assessment in the emergency department following self-harm: qualitative analysis of 102 free-text survey responses. BMJ open. 2021 May 1;11(5):e044434.
• Steeg S, Quinlivan L, Nowland R, Carroll R, Casey D, Clements C, Cooper J, Davies L, Knipe D, Ness J, O’connor RC. Accuracy of risk scales for predicting repeat self-harm and suicide: a multicentre, population-level cohort study using routine clinical data. BMC psychiatry. 2018 Dec;18:1-1

Deconstructing the diagnosis of personality disorder:

Lived experience-led resources:

• Watts, Jay. BJPsych International 21, no. 4 (2024) 78-82.
• Watts, Jay. BMJ Mental Health (2024 Jan); 27 (1)
• Aves, W. Journal of Psychosocial Studies (2023 Aug); 16(2): 179 - 92.
• Wildbore E, Bond C, Timmons S, Hui A, Sinclair S. Nursing Open (2024 Nov); 11(11): e70081
• Wildbore EL. Therapeutic Communities: The International Journal of Therapeutic Communities (2025 May)

Bruch Tamilson paper:

• Tamilson B, Eccles JA, Shaw SC. Autism (2025 Feb); 29(2): 504-1

Data, Research and Reports:

• - The University of Manchester
• - The University of Manchester
• - The University of Manchester
• Flynn S, Graney J, Nyathi T, Raphael J, Abraham S, Singh-Dernevik S, Williams A, Kapur N, Appleby L, Shaw J. BJPsych Open (2020 Mar); 6(2): e29
• Flynn S, Raphael J, Graney J, Nyathi T, Williams A, Kapur N, Appleby L, Shaw J. Personality and Mental Health (2019 Aug); 13(3): 134-43
• - The University of Manchester